My name is Kayla I’m 24 and I have a great family. I have three beautiful children. Jordan is 7 Alexia is 5 and Lucian is 10 months old. He was born with a very rare birth defect which is what has inspired me to do this web site. My kids teach me something new everyday. I have a great significant other, with out him I don’t know what I would do. He keeps me going and has tought me so many things in so many different ways. Travis I love you baby. He is such an incredible daddy. My life is very hectic right now and probably will be for quite awhile I suspect. I work part time , then there are the kids in school with home work and all of the things they need to learn and all of there homework,then there is Lucian all of his appointments, we spent the first 6 months of his life in the hospital, talk about hard,wow. Then we have weekly appointments for him and then we have people out at our house about every other day. It gets very exhausting. Then in between all of that there is baths supper and family time and some where in between I try and find time for myself and my web site. Cramming everything in gets rough sometimes thats for sure. I’m very into our sons medical condition and learning about it more and more every day. I am also hoping to find the time to be able to go back to school to be a nurse. I am most general a pretty awesome person, i love life and i love what life has given me. I’m a hard worker and i always believe you can work harder. I love the st Louis cardinals , i love music especially rock music. I’m a very honest person, I haven’t always been honest in my past but you live and you learn,i am only human. I have definitely learned. I don’t take life for granted. I give everyone a chance, no matter what until you do me wrong then im done. I don’t believe in handing someone your trust I believe in making them earn it. I’m a pretty mellow person as long as you dont mess with my family that is one sure way to set me off like a rocket. I like adult comedy, and adult cartoons. I love watching morning express with robin mead and drinking coffee. And I very much enjoy working on this web site. Everyday I learn something new and I hope to share it with the world so that hopefully one day we will get to the bottom of all of these issues. And lastly I hope it is of much help to others and that one day our son will look back and know that I strive for him and my family and to learn more of his conditions and others daily. I know to take life one day at a time and to treat it like there will be no tomorrow because tomorrow may never come. Thanks to everyone that has been supportive.
Heather
November 1st, 2008 at 8:54 pm
Thanks for stopping by my blog. That little one of yours is so darned cute! I am a student nurse, and learning so much day by day, that my brain often ooozes from my eyeballs. That being said….what illness does your baby have? God bless you.
Michael & Katharine (Elias' Parents)
November 4th, 2008 at 3:26 pm
Thank you so much for reading our blog. We also want to thank you for your input and sharing your experiences as
well. We are so glad you enjoy reading the site. It certainly
helps us put our thoughts into something coherent and
useful. Looking forward to exploring your site more as we have the time. Take care!
Liz McCarthy
November 7th, 2008 at 10:14 pm
Hi Kayla, Thanks for stopping by my blog. most of the links on my blog are for micro preemies (babies born weighing under 2 lbs). I’m in the processing of getting my new site: http://www.micropreemies.com up and running and am putting a large list of micros together. Tell me more about your son. You didn’t leave me an email, so you may want to email me directly.
Meghan (tbonegrl)
November 12th, 2008 at 1:46 pm
Hi Kayla,
Thanks for stopping by my blog. Your children are all very precious, and I am enjoying reading yours as well!
Jen
November 13th, 2008 at 9:41 pm
Thanks for stopping by my blog! This is the first year I’ve been able to plan ahead for Christmas, I’m feeling very organized even though I haven’t actually made anything yet! But there are lots of great ideas out there that I keep stumbling upon that I like to share on my blog!
belle
November 14th, 2008 at 8:33 am
Hi ! thanks for stopping in over at belle and burger.I cannot believe how incredibly busy you are! You remind me of my older sis. She is a wound care specialist , and lives in nyc with her 3 kids and got her RN after their birth.She is the main breadwinnner and loves her carreer . Quite a turnaround from when her and her hubby first were married. She is 38 now and her oldest is graaduating highschool this year.
~The only thing I find questionable about you is yor little devil bird love(hehe) …I am a huge Atlanta Braves fan and quite a baseball freak! I jest , I love that you mentioned it in your “about”. Happy day to you and yours!
Kristy
November 17th, 2008 at 5:30 pm
Good luck! I grew up in a family with a terminally ill / very sick (g-tubes, micket, heart defects, etc…) child and know the road you are walking is a tough one but you are strong enough to make it. We will pray for you and your family.
kebba s
November 18th, 2008 at 4:30 am
hi kayla
i am really moved by your story and the fact that you now have the ambition of becoming a nurse.
well what condition does your child have?
Tina Marie
November 19th, 2008 at 9:18 pm
Fight the good fight! Good luck in all of your endeavors, thank you for sharing your wonderful story, you are a very strong person. Regards and good blessings!
kebba S.
November 21st, 2008 at 3:10 am
kayla pearson my blog indeed is looks awesome but the story about your child born with all the congenital abnormalities and still alive is a case in point which i believe the people from the part of my world should really know about and be enlightened as what can happen if they can believe like you did: not losing hope and believe that your child may not survive. I know you must have been told the survival rates etc.
One thing I can tell you, if your child was born where i came from he would not have survived up to this day. Not because we may not know what to do but with what to do what needs to be done may not be available. I was working in the Neonatolgy Department of my hospital in my country before I came to Taiwan and almost all the babies born with serious birth defects ended up dying and about 98% of all those that underwent surgery died. I was so moved by this at one of our mortality conferences, I told them that we should stop operating on these neonates. What I said sounded ridiculous and it was condemned forthwith. But the point i was trying to make was what’s the need for the operation if we know they would die. I was even told that those babies whether they were operated or not, they would die eventually but we have to do all we could.
Well the teaching is, as a doctor you should always do your best and to the last second in an attempt to save your patient. But I believe sometimes common sense should be allowed to prevail over our sense of responsibility as doctors as stated by Prof. Hutchison, one of the finest English physicians of our time in his advice to other doctors: LEAVE WELL ALONE; one of the things he advised in his Leave Well Alone was; if the intervention for a patient would make him worst off than without the intervention, leave well alone.
Well i wish your baby all the best.
Sudeep D'Souza
November 30th, 2008 at 8:22 pm
You have a lovely blog and a very moving story.
Sher :)
December 3rd, 2008 at 1:22 pm
Hi Kayla,
I signed up for the ornament exchange at Island Life and you’re my partner. Yay!
I was hoping you could give me some hints as to what you’d like or maybe your favorite things.
My email is sherry@sherswares.com. Hoping to hear from you so we can get to know each other a bit.
Sherry Wells
Brittany
December 8th, 2008 at 7:38 am
Hi Kayla
I had no idea you were 24, I thought you were a kid like me. That leads to the of how old are you, well I’m 11.
Brittany
P.S. Thanks for commmenting on my blog. I should of got back to you as so as I got the comment Sorry.
Iceman
December 23rd, 2008 at 12:07 am
Firstly – Thnx for your comments at Insanity Unlimited!!!
Secondly – I think you write well. Touching words indeed. Your kids are too cute. You seem to be a good mom in a perfect family. I hope you stay happy for a huge part of your life if not always. I wish your family all the best.
Nice to know you wanna keep getting back to my writing, cause I feel the same way about the place ya got here!
Lookin’ forward to more stuff here.
Tc
Cristina (elysmom from P2P)
January 11th, 2009 at 6:58 pm
HI,
Stopping by to say hello.
Kayla
January 11th, 2009 at 11:40 pm
Hey thank you so much for stopping by it means so much to me. I hope to get to know you better. P2p is great so far i really like it and i am not even sure how i came upon it, I look forward to talking to you more and i hope you come back!
Amber
January 24th, 2009 at 9:30 am
Wow you seem like an amazing person,mother and just good hearted all around. You are very brigth and I think you would make a great nurse some day.
Irene
February 8th, 2009 at 11:04 pm
Hi Kayla, I discovered your blog when you started following me on twitter. My heart goes out to you and your family. You are such a strong woman, an amazing person and mother! My best wishes to you and your family.
Anel Montes
March 4th, 2009 at 7:39 pm
Hello Kayla, My name is Anel and like you my son was born with alot of health problems…I have a son and his name is Julian..am 18 an I had him when I was 16..when I was preggo with him..I had the high risk of having a child with down syndrome…He was born at 34 weeks..with down syndrome and high drops, heart defects, brain damage, anemia, heart rate problems, high bellirubia and so much more..My son is 2 years old now..well on may hell be two…he’s currentely g-tube dependent because he aspirates liquids and goes into his lungs, he has seizures and often goes into resp. distress..I just want to say thank- you because you’ve opened this page up..My son is everything to me and has thought me alot. Hopefully you can email me at some point and maybe talk about our sons..thanks