Posted by Kayla in Lucian, Myself | 7 Comments
It’s 1 am and a 103.2 Fever
It is one am and I am not going to be getting any sleep again tonight I am waiting on the hospital to call me back for the unteenth time today lucian is running a 103.2 fever it is just getting worse and I am scared I gave him tylenol at 8 when it was 100.5 and 4 hours later it is 103.2 i have a wet rag on his head and he doesnt seem to mind it at all, i have given him a couple back to back neb treatments like they ask me to do a few moments ago and and getting ready to give him his last one. His nose is so clogged and he is so helpless i feel so bad for him. I just want him to feel better. So far I have been told two different things the first lady I talked to told me not let his fever get over 102 and that a low grade fever is fine well 103.2 is not freakin low grade. I have made myself my unteenth cup of coffee, My head hurts so bad from n sleep it is starting to subside its self. It is so hard talking to someone on the phone trying to explain to them what is going on with our son when they havent delt with him before. They have no idea about his past all they are going on is what i am telling them and half the time half of them dont even know what the word or meaning to esophageal atresia is. Most peopel think it is esophageal cancer. Not the case. It IS ACTUALLY the congenital absence, or the pathological closure, of an opening, passage, or cavity. and Esophageal is self explainable. So I am now done with his final neb treatment. So I am waiting on here call back and I am just going to have to take it like I said earlier hour by hour. There is obvisously a reason he has sucha high fever. He has never had a fever this high ot ever. I am worried sick I will be back on and I will keep this up dated.

Hang in there, you’re not alone. Our boy is 4 months now and getting over the EA/TEF operation as well, doesn’t feed at all, and the kicker for us is that we have newborn twins so they dont give a break ever – feeds are every 3 hours. My wife’s lost all patience, and mine is wearing thin. I hope Lucian’s fever is just from something minor and he gets better soon.
Thinking of you guys. God bless and protect. Don’t be afraid to yell at people to get what you need.
I feel your pain. Hang int here you guys have made it this far you will make it all the way. Thats what I tell myself every time I am so exhausted just want to give up. There are many times I sit there an wonder how are we going to get through this, I guess just take one day at a time, I want to stay in touch with you guys. I hope you come back and visit my blog, it means alot and keep me updated on what is going on with your little ones. How long was his gap? Did he have any additional problems? Lucian was also born with tracheomalacia, bronchomalacia,laryngomalacia and atalectsis of the lungs and down syndrome. I also have two other children 5 and 7 so I know what you mean when you say it is none stop and the patients are running on ice. I feel for you and your wife. I know what you are feeling . You guys will be in my thoughts and prayers and like I said I would love to stay in touch.
Don’t forget you can alternate tylenol and ibuprofen. Something about the combination helps break a fever quicker. This is what I’ve been told by multiple medical personnel.
Let us know. I remember when Lil’Gal began having high fevers. She would get up to 105 and it wouldn’t break for anything. It was thought to be a virus from time to time.
But, I knew better. It ended up that the urinary reflux had gotten worse and was a level IV. Which meant the urine was refluxing all the way up her ureter to the kidney!
Thank goodness we caught it before damage occurred.
So, hang in there but be insistent. Though, I don’t doubt for a second that you wouldn’t be. Maybe, if you have to miss work to be with him, you can sleep with him too while he naps off the illness.
Keep us posted.
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Hi Kayla!
I will be checking to see what has happened. Crossing Fingers and Praying all will go well. Wish him the best and keep taking care! 
POOR POOR LUCIAN! I hope all will be okay and the fever will be lowered so that he will be back to normal and feel better. I feel so bad for him.. it must be hell to deal with all that! A fever of more than 100… Never experienced it!
But hope the doctors come quick and help A.S.A.P to save him!!
Hugs to you all, Of Good luck,
Nadine
Elyse suffered very bad fevers when she was a baby… the only thing that helped her was alternating the tylenol and ibuprofen. She couldn’t take ibuprofen all the time because of stomach bleeding when she was small.
another thing that helped was the cooling blanket at the hospital.