Lucian and his eating.

Lucians nutrition is a very important factor. He is on pediasure enteral. He gets 4oz every four hours. It is 237 calories per 8 ounces. The reason we went to this is because it is higher calories and he can have smaller amounts because of his acid reflux and also because when Lucian was born he only weighed 4lbs 9oz so he was pretty small aside from that while he was in my whom he never ingested any of the fluids because he could not swallow his esophagus ended in a blind pouch. So I filtered it all for him. So he really never used his stomach so in a since it was kind of collapsed. We have to watch what we put him on because of his acid reflux and all of the other reasons above. I was really surprised this stuff worked and he tolerated it. But I sure am glad he did. It seems to working ok but we need to increase his amount here soon to either 4 1/2 or 5 ounces. I need to get him into Sibel she is a nutritionist/ dietitian. But we also have a nutritionist through early intervention who comes out and she is going to help with food textures and different techniques, hopefully she might have some ideas. Lucians main source of nutrition is through his g tube other than what we get him to take oral by spoon. He will not have anything to do with a cup or a bottle. And he cant have anythign in chunks because he doesn’t know to chew and it will get lodged in his esophagus. Lucian has the dilations to keep his esophagus open so that food and spit can pass through to his stomach. When Lucian was born he had the top part of the esophagus that came down and ended in a blind pouch then he had a gap and then there was the piece of his esophagus that was connected to his stomach that came up the two ends just were not connected together. He had a 7cm gap. It took two months of stretching his esophagus everyday to get it to be able to connect the two ends and still when they were connected it was a very tight connection. So we have two main issues right now getting lucians food intake up and getting his esophagus to stay open. Hopefully my prayers will e answered. Lucian has had his g tube since he was 5 days old. It is really all he knows. When he was in the nicu they insisted they were they ones that had to try the bottle with him and now I wish they wouldn’t have done that because he chocked so many times now he is terrified. It takes alot of time and ALOT of patients. Sometimes it can take a couple of hours to patiently feed him orally. He is so smart. Some people think he has no idea but in all reality he knows whats going on and he remembers everything. But the stranger anxiety is going to be around for awhile he is constantly looking for mom and dad it is so cute. I still cant get the little ham to say momma. He says dadadada and babababa and all sorts of other babels but no momma, or ma ma ma. He is such a little sweet pea. As are all of my kids. Most all parents think that about there own kids I think or atleast they should. Such a blessing. Travis’s grandma has to have some things done tomorrow with the extra fluid on her brain so all my prayers are going to her to. I worry about her so much I love her alot. She is such a sweetie. She reminds me of my grandma Jean. But she passed away four years ago, doesn’t really seem like, but I don’t really like to think about it so a different subject now. I finally got the Christmas trees down and put away with all the other decorations. The kids were disappointed but they will be more excited next year don’t wanna burn them out on it. The dryer is still broke so i had to wash some clothes and hang them to dry finally the laundry mat is just to expensive. So I have to figure something out this s going to drive me insane. I feel chunky lately all I have been doing is shoving my face. That is going to have to come to a halt. I need to exercise more it makes me feel better but finding the time is a different story. I’ll just have to fit it in some where maybe when Lucian and I are playing. Well I guess I am going to get off of here and try and finish a couple of things around here and then get a shower and get to bed I have to be up extra early tomorrow morning. Besides that my R.H is bothering my joints so badly I can barely type.Good night to you all and in the words of my gal, Almost happy Monday.