11/21/08 Lucian’s Dilation Today

So we went in for Lucian’s dilation this morning at 6 am and he did very well. They got hi from a 30 to a 32. Right were we want him to be, last night Lucian did so well he was literally opening his mouth and going for the sweet potatoes we watered down for him we got probably an ounce down him which is so much better than 2 bites! yeah! We got home from the hospital ok and so far he has gotten sick a few times, I don’t under stand the difference in why last week he did not get sick at all and this time he did. I think the only difference is that last time they gave him his medicine awhile before the dilation. This time he had it and went pretty quickly then was in and out. So I am not sure exactly but we will figure it out. This was the last dilation for almost 3 weeks were going to try and go but I don’t know. I think I am confident that he will do well with the two weeks but I am not sure about the three but if we think he is slopping down hill we can always call and they will get us in, they are so good about that and we appreciate it so very much. Doctor Rogers thinks the food he is eating is helping his esophagus stay open which I also think is helping. Doctor Rogers has informed us that he is going to be gone for a week in Japan. That has to be so cool, I’m not sure if it is business or pleasure, but I would imagine business. I still think it would be so awesome to see the world like that and to go to all these different places. I will probably never see japan. I think I might find it a little scary going that far to be honest but I don’t know. The more I am in and out of the hospital every week with Lucian the more I long to eventually work there. I was thinking on getting a second part time job at the hospital either cooking int he cafeteria or cleaning rooms I wouldn’t mind, I love to clean. I love to take care of people in general, there is no better feeling than helping someone. I think I might be getting the schools books I need to study for my test so that I can go on to college im so excited, if that is the case that means I can study and then hopefully I can get into college or take some college classes to do what I long to do and that is take care of little babies. And eventually be a child parent advocate. But I really want to be a nurse. I never new what I wanted to do up until almost a year ago and the more time I spent and the more things I learned I found I have a real passion for it. And why not go on to do something I love. Thats just it someone will always need a nurse just like they will always need doctors and surgeons. The pay is not as good but hey atleast I would be putting my whole heart into something I love. Hopefully things will start looking up. Christmas is my main concern. I just want my kids to have a good Christmas. I dont honestly care what it is like for me as long as they have smiles on there face, and if that is the case then that means I will have a perfect holiday. Atleast Lucian is opening his mouth and is wanting to eat now, maybe he can have some watery mashed potatoes and stuff at last.. We will have to just wait and see my main thing is his birthday. Doctor Rogers even remembered his birthday. I was so excited he remembered. Thinking about all the things he has done for us and our son brings tears to my eyes. I hope we continue to always and forever have a connection with him regardless of the hospital, because he is someone we most certainly don’t want to let go. I hope he feels the same way. I will be praying he has a safe trip to japan and back. So I have the rest of the day off then back at it I go tomorrow. I even have to work on Thanksgiving. Stressful but then I just think bills and Christmas and realize that is even more stressful and we need all the money we can get. I was also thinking of just finding a couple house cleaning jobs but I don’t know how easy or hard that would be. Well I guess I will go for now I have alot of work to do. I will be posting more later.