Posted by Kayla in Myself | 14 Comments
Another Day in The Hospital.
This is gonna be a short one and I am sorry but I do not have much time. Alot of things are going to be taking place on Friday. We had a ct scan today to look for vascular rings in his esophagus b/c if that was all it was and the reasn why his esophagus is not staying open then it would all be simple but that is not the case that all came back ok so we are back on the road of not knowing why yhis esophagus wont stay open. He is still running a fever off and on of 103.3 He is a horrible cough and they think that part might be rsv even though eh has had the shots it is just a prevention it doesnt stop him from getting it totally, they said they have seen kids get it so bad they are hospitalized fro months and on the vent. 
Why Why Why? Why my baby? What did he do to deserve any of this. What did I do? He is also battle in the sleep study issue since we found out two months later that it was abnormal and it can get worse if not treated and they said in his charts that he dropped int he low 70’s not good that is horrible, so now they are telling my son has been going through this all along and needed 02 at night but the pulmonologist was just top lazy to send for the report, aghhh,i wanna rip someeones throat out seriously. I started chewing hispartners ass today when he came in and told me all of this I dont think Travis new what to say except excuse me I need to puit her on a leash. Sorry he is my baby and there is no good enough bull shit reason that they had to wait to friggen months to get these results back it is bull shit and it is no ones fault except for johnson. Anyways so it is a day by day thing. Friday they are putting him out for surgery and I am so scared, what if he cant come off the vent i dont even want to see our son on the vent again . But I have along road ahead of me now just when I thought it was all calming down not the case. How am I going to make it how am I going to work, school home and everything else, i just have to shove it asside and keep trudging along. Thank you for all the thoughts and prayers I will be in touch again as soon as i can. I have to work tomorrow and i am not wanting to leave him at all but i dont have a choice they are going to try and get me out early if they can. I dono I didn’t get any sleep last night he was so lethargic last night i and today So I dono but I have to go for now tahnks to all and have a lovely night. Many prayers are still so appreciated we need all we can get for Lucian right now.
Praying for your little guy.
You and your son will have a prayer coming from California tonight. Be strong and *BIG* hug to you.
Dear Lord- Please be with Kayla and her family in this stressful time. Please give Kayla strength, mentally as well as physically. She is SUCH a hard worker and such a GOOD mother. Please guide the doctors’ hands and help them to see problems and find solutions the first time. Please give them wisdom and insight into Lucian’s breathing issues. Please give the family peace and comfort, and cradle Lucian in your wonderful embrace as he undergoes surgery.
In the name of the Great Physician, Amen.
Kayla – at my house, we’ll be praying for you, Lucian, your whole family, the doctors, the caregivers, your employer, and everyone who comes into contact with you and Lucian. We pray that you will be able to feel God’s closeness & love for you all, that the medical professionals will have wisdom & understanding, that your job will remain intact, that you will have strength & peace. God bless you, Susan
Kayla,
Laura Smoczyk is part of my church family at Chatham Presbyterian and has again requested prayers for you, your son and family! I will continue to surround you all in prayer.
May God’s wisdom be shown through the doctors, His strength provided to your son during surgery and His overwhelming peace and comfort surround each of you during this difficult time!
In Jesus’ precious name, Amen!
You and yours are in my heart and thoughts. We wish you the best. XO
Kayla, I was directed to your blog from the Chatham Presbyterian Church Prayer Chain. I will keep you in my prayers and hope that you find some comfort before the surgery tomorrow. what a lot the two of you have been through this last year. Sometimes there doesn’t seem to be any explanation for why heart renching things happen…we just need to remember that with God nothing is impossible. Luke 1:37.
i love you ur awsome!!!!!!!
Kayla, I go to church with Laura and found her prayer request for you and Lucian on the prayer chain today. I’m praying the same prayer that she wrote above for you, Lucian, and the medical team. I can’t imagine what you’re going through, and I don’t pretend to have all the answers. But I do know 2 things:
1. Neither you, nor Lucian, did anything to deserve this. Pain and suffering , unfortunately, do not discriminate, and the best people often suffer the worst fates, it seems. It helps me to think of Jesus and the fact that he certainly didn’t deserve what happened to him either. Know that God is with you in the same way He was with Jesus on that awful Friday.
2. God’s got Lucian and you in His loving care and He will see you through it … no matter what.
I’m praying for that you will be able to sense the Peace of God that passes all understanding as He fully supplies whatever you need to get through this most difficult, painful time.
In Christ’s love,
Sheila
Kayla, you and Lucian are in my prayers. I pray you stay strong for your son and that the physicians heal him quickly.
I too, have been in your shoes with my son, Chad, who has had over 35 surgeries since he was born with spina bifida.
You will get through this and find the patience and strenght that you need, with our lord’s help.
Keeping you in my prayers.
Laura
I truely do admire you! You are such a good mom and all my prayers go out to you and your family. Stay strong
You are a very smart person. Dont give up. You two stick together and with gods help you will make it through this.
Hi, I found this page through BabyGaga. My son is almost 5 months old, and he was born with duodenal atresia, and he has Down Syndrome as well. We are getting ready to have a g-tube put in on Feb. 2nd. I would love to talk and share stories. Please email me sometime! Thanks-Lindsay Cox
Here in Argentina , we will be paraying .
Hope everything will be Ok.
I will do a special post for you on my blog , so everybody will pray.Be strong , we are with you , you know
Hope to hear the news soon.
Kisses ,
Priscila