Posted by Kayla in Myself, Silas | 1 Comment
If only I could Blog at Work
I just got home from work a little bit ago after being there all day and back at it again tomorrow I go. Lucian is still sick i am not sure what is going on with him. I called Doctor Rogers this morning because Travis and I were worried maybe his esophagus is stricturing down. But our surgeon doesn’t think that is the case cause he has been so easily dilated the last several times. He has stopped taking all baby food orally by mouth and we bare only able to get the first bite int hen he is done he starts fussing and shaking his head no no no and we no he is not going to have it. He has also been doing this thing were he is retching at times after he eats there has been a couple of times were he has vomited stuff up little amounts maybe a tea spoon. However we have to hook up his g tube s that he can push ever thing out of his stomach so that it doesn’t come up and out his mouth because since he has the Nissen fundoplication and everythign he can only get some stuff up and he has to work pretty hard to do so which is why he retches.He has had a low grade fever the last few days and it was at 100 an 102 and has not had one since. However when I got home a few ago I was going to get him situated and he has developed a rash on his face and Travis said he had not noticed it any where else on his body but when I looked him over he had some on his tummy and lower back. there just tiny tiny little red dots. We have not done anything different as far as foods soaps or anything. So I am going to call the pediatrician and see if I can get him in before I have to go to work. I just want to knwo whats going on. it is not like Lucian just to shut off eating his food by mouth he loves his food. He is not coughing at all he is not stuffy and has no apparent symptoms of a cold. So I am going to try and get to the bottom of this. Jordan got green again today bless his little heart he is doing so awesome and is making me so proud I probably tell him that a hundred times a night. Lexi is doing well also she is trying anything she can to get as much attention as possible which is normal so we do fun things together like play candy land or paint her finger nails or whatever it is she has up her sleeve. I am scheduled quite a few hours this week and next week hopefully it stays that way. Even though i am tired I just have to keep on moving along no matter what. Them 133.00 paychecks are a joke. It is going to take some time to catch back up from that. the week the doctor told me I couldn’t work because I was vomiting anything I put in my mouth. Aghh hope I am past that seem to be! So just trying to stay on top of everything as well as keeping my brains wish i could blog at work i had come up with a perfect one earlier today. Maybe I will have time to write about it tomorrow I hope. I got me this fruit smoothie that I was drinking tonight. It is called Naked. It is 100% juice it has 22 strawberries 1 1/3 bananas 1 1/3 apples and a hint of orange. It is very good. It says clearly on the bottle this is not a low calorie food. But it is tasty and I figure fruit is good for the baby as well and it has no additives in it or extra sugar so that is good as well. i have drank to of them tonight. I ate alot today as well a sub sandwich and some chips a piece of pizza. Yesterday night I was a total pig I had a chicken sandwich and a fry 4 nuggets a vanilla milk shake a huge pickle some chips a cookie pretty much anything that got in my way that was edible. But I have to get off of here I have the speech therapist and nutritionist coming at 8:30 am and I have to shower and find something to munch on and make sure the house is presentable. I will be in touch tomorrow with updates on everything. Tonight my prayers go far and wide. I pray that Lucian is better tomorrow and is back to himself but for some reason i don’t think it is going to be that easy this time and I think god ids going to make me work to find out what is going on. That is ok he has a reasn for everything.

Looks like you are doing pretty well holding it all together. What great news about Jordan! Maybe it is time to set a goal further out . Say… a reward of going to see a movie with you or Travis on a Saturday or Sunday if he can go all week on green. Sounds like he is doing great. I will keep Lucian in my prayers and pray that you find out what is wrong now before it goes too far. Have a great Tuesday! Blessings to you and your family.
C.O.L.E. Prayer Team
http://www.colesfoundation.com
Patti