Bonding with your baby and Esophageal Atresia

Bonding with your baby is a very important thing I think. It starts very early on, bonding between parents and there baby actually begin before birth. It is very exciting to feel an infant move in the womb. I remember longing to wait to feel our son kick in my stomach, and the day I felt the first little twitch was so exciting with out a doubt. And as time goes on as the kicks get stronger and stronger the more you yearn to have your baby in your arms. Where you know your self with your own eyes that he or she is ok, I don’t believe there are any tests int he world or sonograms that can prove that your baby is exactly healthy. I had several sonograms done during the pregnancy with our son and many tests as well, all results given to me that we were having a healthy baby boy and that everything I was feeling was fine and normal. All the while I felt my doctor was being very passive, I tried to switch doctors because i didnt feel my pregnancy was getting the best possible treatment that it could. But with in that being a long drug out task, it never ended up happening because most of the time depending on your insurance i would assume after you have found a provider they wont switch you. I always had that feeling something was not right, I had high protein in my urine I vomited the whole 9 months and i couldn breathe, I broke out in a rash, I never wanted to eat, it just made me feel sick, through all of this our son was born on Dec.9th 2007 with esophageal atresia /tef. I just dont get how you can see a doctor for nine months and one that is passive at that and then after you ahve the baby and all this stuff is wrong they act like it is no big deal and the last thing you want to hear is im sorry because, they didnt do all they could to figure everything out, atleast that was me in my case. They even measured all the fluid in my tummy right as I was in labor and told me it was fine and well after i had him when i had to 12 foot radius’s of water gushes they new it was not normal and told me my amniotic fluid was well over like 42 which is highly dangerous. If you are pregnant and you have any of these symptoms I would beg you to make them listen to you if they wont or get another doctor if you can because you may not be able to figure out right at that point that your child may have e.a but atleast they could do the things that they are well aware that they can do. I have talked to so many e.a mom’s and all the symptoms are all mostly the same. When I had my last sonogram in October Lucian weighed 3lbs 10oz and in dec. when he was born at 4lbs 9oz and i honestly believe that low birth weight is one of the things that comes along with a baby that has esophageal atresia. After they weighed him they decided o change my dew date to Jan 13th and there is no way i was due then so there is always a argument when they ask if i carried Lucian full term because we say yes. Just wondering if there are any other parents out there that experience the same symptoms or different as well while carrying a baby with esophageal atresia? Even though Lucian was taken from us a moment after we had him and we didn’t get to see him until the next day it didn’t matter you would think having a child in a hospital for 6 months straight that you may not bond with them as well, but I think that thats not always the case i guess it depends on how much of a proactive parent you are. I dont believe you can just sit back and ride it out and do everything the doctors want you to do because it may not be the best thing not with something as rare as esophageal atresia. Tracheomalacia ,Laryngomalacia, and bronchomalacia, no one really has all of the answers it is really always a guess and you hope you get to the bottom of it because you will never find one e.a child that is the same as the next, because they all have symptoms and things that very from another. We bonded so close with our son, we practically never left his side unless they shut us out to do a report and sometimes they would do ours with us in there. I feel we had a right to know everything anyways and i mean everything to the t. Hell I remember times we fell asleep in chairs leaning our heads on his bed. Then there were days we went on end with out a drop of sleep all being worth it.