Experiences at Hospitals

I could tell you of many experiences but this is just one of them. This was a typical day at Childrens Memorial In Chicago.
This is just a little bit of one of the days that we went through at childrens memorial in Chicago it was one bad day let me tell you so it went some thin like this…..So we went round two with these people today. I swear my stress level is so freakin high it’s not funny. They had a nurse practitioner come in who just so happen ed to ask me if we had any questions so of coarse i said i have a whole book i just dono if you are the person to answer them. So she asked what they were and i told her the things we were upset about if you want me to prioritize them then it would first be having a nurse in our sons room at all times, second would be his g tube the third would be lack of communication, and the fourth was when can we go home? But not exactly in thoughs order. So i gave her a piece of my mind and then she left, then we met with a social worker after all that then she ended up making me cry. Today was just a mess i swear these people dont understand what it is like to live out of a hospital to have to deal with alone what we are dealing with with him and now we have lack of communication, that dont make it any better at all. That makes it so much worse so again tomorrow i have a meeting with the nurse manager so that i can adress these issues because they have got to get better. This place is not right it is so messed up i thought springfield was bad at least they listened when you told them something you know. They still insist that it is normal for his g tube to smell the way it is and i really disagree if that keeps up were gonna end up with another infection. He is some where around 11 pounds i would n know surprise surprise b/c they dont have a chart that goes that high so she told me some where around 11 pounds bitch thought i was stupid i said i know you have to have what it is in kilo’s its not like the scale just stops at 10lbs 15oz thats just their chart. All of what i see is pure laziness because people don’t wanna help out as much as they should. I beg you as a parent of a child that spent the the biggest majority of his life int he hospital, you have to speak for your baby know one else is going to and if you dont then, something really bad could happen. I cant even tell you how many times these people had his charts all mixed up, and we thought Springfield was bad, Springfield is a palace compared to that place. And the sad thing that is strictly a transferring hospital they have no mother baby unit there, god bless all the litle ones that are there with no parents that dont keep tract of everything, because chances are they will run into a huge problem well atleast if your child has e.a. anyways. If we wouldn have wrote everything down we would have never have been able to keep things straight. Our son is goning to have books and books of information on him when he gets older and i think he will appreciate it very much. Its just sad some parents out there we witnessed many who the doctors will tell them something about there child and they dont even question it. You cant do that, question everything. EVERYTHING.