Round Two

Once again I am frustrated. I called the week after his sleep study and no one had read the results yet. Then when I called St. Louis they said the doctor that they have read the test was out of town so here we are one month later and still no results. So I haven’t heard anything so I decided to call today and I got a call back from the pulmonologist’s nurse today saying that the results where in but the doctor was out of town go figure the St. Louis doctor is out of town and now the pulmonologist here is out of town and he has to be the one that reads it because he was the one that ordered it. So I am stuck waiting until Monday but I am sure we will get put off then to. Sure is a good thing my son isn’t deathly ill with problems with sleep apnea. The last sleep study we had they waited 3 months to get the results to us and that was with me fighting to get them. And then they tell us the test was abnormal and that he needs to have oxygen on when ever he naps or sleeps and that is when we did that and then had all the issues with Lucian getting the cord wrapped around his neck and stuff and I swear they thought I was crazy and didn’t think I new what I was doing and that was when the pulmonologist said well lets admit him to watch him on it like we didn’t know what we were doing. Well we did and it didn’t matter what we did I would awake to a baby that could barley cry because he had it wrapped around his neck so many times because he moves so much in his sleep. Well when we went to the sleep study he did it there with the oxygen cord and the other cords for testing not even 5 minutes after she had him hooked up so she witnessed it and you could tell she wasn’t happy. Seriously what am I so post to do pin my son down. They can go to… where ever they wanna go because I am not doing that our son was pined down for 7 straight months of his life. So if this one is abnormal they are going to have to figure something else out. I am not going to risk my son’s life over an oxygen cord because he has sleep apnea even though I want to treat the sleep apnea if he has it. The problem is the pulmonologist likes to over react over test and well he just isn’t that brilliant. And the way he explains things I will never forget that trying to explain my sons airway to us and he compares it to a donut shop and vents out side and it’s like buddy just give me the medical terms so I have something to go things I can research and so on. Anyways so with all that said we didn’t use the oxygen on him for very long and he has been doing great. The only time he has given us a breathing issue is when he vomits and it takes his breathe away or he is refluxing then it takes his breathe away. But he is on the highest dose of medicine for his age to control his reflux.
So we will see how the results come out. It will be interesting seeing that he had the cords wrapped around his neck the majority of the time s then we had to take things off and re hook him back up and when he got up that morning some of the leads were off. So it is probably a joke but like I said time will tell. I just want our son to grow and be healthy and to have everything under control. He is doing so well I would say our biggest goal right now is food by mouth and liquids by mouth because it hasn’t been going so well. And making sure he maintains his weight which I will make sure of that. I have to be at work bright and early in the morning and I work all day long. Yay for me. I hope everyone else is doing well. And I’ll be back with updates soon.