May 27, 2009

Posted by Kayla in Lucian, Myself, Silas | 1 Comment

Today 5/27/09

So I guess everything has been ok. Lucian is doing ok still trying to kick his cough from his cold and still has a little stuffy nose. I think he has allergies though. The formula we switched him to last Wednesday I really haven’t been able to tell a difference in anything yet like him going to the bath room and reflux and things like that. All I know is he has never gone to the bathroom with out help really with juice or something and I am going to have to get to the bottom of this because it is not good for him to go as long as he does. Our speech therapist and nutritionist wanted us to switch up his feeding schedule so that it would be easier on me and maybe I could get more sleep doing it the other way. But it just hasn’t worked out. I am going to have to go back to feeding him pretty much around the clock I think for him to gain the right amount of weight. Because we were feeding him at 7 ,11,3,7,11,3 but it is just hard when I don’t get home from work until midnight some nights and then having to stay up until 3am and then sleep from 3:15 til 6:30 And then some days I work days so Travis does the 11,3 feed and then I can do the 7,11,3. If I could drink as much coffee as I was before I was pregnant I would be in good shape but it looks like I am just going to have to start toughing it out again. I am also going to start pureeing table food for him to eat the nutritionist and speech therapist said there is more fat and things in table food than baby food they said baby food is primarily to just teach baby’s how to eat. Lucian knows how to eat it just has to be a certain texture right now for him not to gag and choke. If I had tubes down my throat the majority of my life I would choke and gag to. I did spoon feed him so liquids yesterday and he did very well he actually loved it. So I will continue that so that he can get used to the liquids in his mouth because the consistency is alot different that baby food or pureed food for that matter.
Jordan is doing well he is excited for school to be out and Lexi is asking when she can go back and is saying it is taking to long. I have to get Lucians prevcid today because he is out but I think I am going to see if my mom will pick it up because I have so many things to situate before I have to go to work.
Everything will all work out it always does.
I have another doctors appointment on June 3rd for the pregnancy. I feel pretty good other than being tired. Which with our schedule is totally normal. I really don’t know who wouldn’t be tired. Heck I get up and have to get Jordan on the bus and get him ready and then I have lucian to feed diaper and get situated and Lexi to cause she is already out of school so she always wants breakfast as soon as she wakes up. Then if we don’t have appointments there is always plenty to stay cought up on around the house. I absolutely hate working nights because it totally messes up my kids but I have to do what I have to do to take care of my family. It is getting a tad harder the more pregnant I get I have noticed that. I am due November 8th. So only like 5 more months. We should be able to figure out what we are having here really soon and I can’t wait. Although I really don;t care as long as the baby is healthy. I had a first trimester screen done were they measure the back of the baby’s neck the neck.
The First Trimester Screen is a new, optional noninvasive evaluation that combines a maternal blood screening test with an ultrasound evaluation of the fetus to identify risk for specific chromosomal abnormalities, including Down’s Syndrome Trisomy-21 and Trisomy-18.

In addition to screening for these abnormalities, a portion of the test (known as the nuchal translucency) can assist in identifying other significant fetal abnormalities, such as cardiac disorders. The screening test does not detect neural tube defects.

The first trimester screen has been available in the U.S. for several years, but has only recently been determined an effective means of early chromosomal abnormality screening. A study published in the New England Journal of Medicine in November 2005 determined that first trimester screening was the most accurate non-invasive screening method available. The combined accuracy rate for the screen to detect the chromosomal abnormalities mentioned above is approximately 85% with a false positive rate of 5%. This means that:

* Approximately 85 out of every 100 babies affected by the abnormalities addressed by the screen will be identified.
* Approximately 5% of all normal pregnancies will receive a positive result or an abnormal level.
* A positive test means that you have a 1/100 to 1/300 chance of experiencing one of the abnormalities.

It is important to realize that a positive result does not equate to having an abnormality, but rather serves as a prompt to discuss further testing.

The screen should not be confused with screens performed during the second trimester (often known as the Quad Screen or Triple Screen ). These screening methods are less accurate and are performed between 15-20 weeks.

The blood screen measures two pregnancy related hormones: hCG and PAPP-A.

The ultrasound evaluation measures nuchal translucency (fluid beneath the skin behind baby’s neck).

This non-invasive procedure combines the results from the blood tests and the ultrasound, along with the mother’s age, to determine risk factors.
Anyways my test results came back and it said that I am at a higher risk for having a baby with d.s and other complications than a woman over the age of 35. They did rule out trisomy 13 an 18 which is very good. She asked us what we would want to do and pretty much told us we had the option of abortion and Travis and I both told her we are not worried about the down syndrome we are more worried about the other things like the esophagus forming heart defects and things like that that that we really want them to stay on top of. She also said I could have the amneio and it would be a for sure things because they take out a piece of the placenta but we decided against that because she said if we new wanted to keep it then she would not recommend it because I would be at a greater risk for miscarriage. But I refuse to believe anything is wrong until they can physically spot something on a sonogram or when he or she is born there is a issue we will address it then. But I am not going to sit here and say there is a problem if I am not 100% guaranteed that there is a issue because from what I have read there are alot of false positives and negatives with this test. Either way it is what it is. I can look at my son who they diagnosed with down syndrome after everythign eh has been through and he is the smartest little shit I have ever seen. I wouldn’t trade him for the world he is my world all my kids and family are. Other than that she was just concerned I had not gained enough weight she said I had actually lost 2 or 3 pounds but I think from our scale I have gained a few so that is good, She has me drinking these boost drinks and I try and drink v 8 juices to so I get my vegetables no matter what as well especially when I am at work. Other than that all is well I have not been vomiting the whole time like I did with Lucian which is great. I had some issues with it in the very beginning but who doesn’t.
Other than that mostly everything is good. We had a awesome memorial day with travis’s family out at the camp ground. There is so much to do out there and it is so relaxing. The most relaxing day I have had in a long time it was very nice.
I ahve to work tonight and it is going to be along night I just hope it goes by fast but I probably won’t get home until midnight again and then I have to be back there at like 10 am and work until 6 or so. I guess just as long as I get my hours because everyone has to make them dollars to survive. Weather you feel like it or not you just shrug them feelings to the side and go on that is what i do. Sometimes I get so sick of tired of acting like I care about the people that come in like hi how are you ok I don’t even know you I really don’t care lol how you are. And I swear I wake up in my sleep and say thank you fro calling caseys this is Kayla how can I help you. I am trying to get my school stuff figured out so I can get it done before we have the baby hopefully it will work out the way i want it to. Ha vent even had the time to get started but I am going to here in the next week.
I think that is pretty much all that has been going on other than my mood swings and being tired of feeling all sensitive or whatever it is. It seems like the smallest things upset me or get to me and then sometimes I have a habit of just holding it all in. After awhile it can make you want to explode. I am getting ready to call and find out the results of lucians sleep study the results were so post to be back his past friday so we will see I will be back with updates. Hope everyone else is doing well.

  1. The link to your page has been down on my server and I have not been able to write to you. Sounds like you are still doing great. When the going gets tough the tough get tougher! Stay strong Kayla. You are in my prayers as well as your family.
    C.O.L.E. Prayer Team
    http://www.colefoundation.com
    Patti :)

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