Mar 4, 2009

Posted by Kayla in Myself | 0 Comments

Update on Everything

So Lucian has an appointment at 2:30 they want to make sure he is not aspirating with the kind of cough he has. So that will make me feel better. I just don’t want to wait to the point where he starts loosing weight because right now he is sleeping so he clearly doesn’t feel well. He never sleeps at this time. I called Jordans teacher and am waiting on a call back from her to let her know what I found out. I finally found a place that will see him and they take my insurance card as well. I am going to try a few things someone suggested in a comment on my site. However I have tried some of these things several times and have gotten the same results. But I haven’ tried doing the home work in small amounts. So I am going to try that. There is something I don’t understand though, It was mentioned to try to make things into a game with him. One thing his teacher has noticed as well as we have is that he is fine doing things as long as they are a game. It seems sometimes that is all he cares about is games between his Nintendo d.s which i still have and he has not played. As well as any other type of games. Or if it is on tv. which I have cut his tv time and I have thought about making him earn tv time. But I don’t want to take all the fun out of his life totally I feel he still needs something to look forward to or else it would be like he would be feeling like well I am not getting anywhere and s whats the point and I don’t want it to be like that, I don’t know if you think like that at 7 but I am sure they probably do.I am also going to try the individual time with him even if it means letting him stay up 15 minutes later than everyone else. I just want him to be happy healthy and smart, which I know he is smart I hope eh is happy he comes off like he is sometimes though when I have to set rules and stick to them when I tell him to do something he gets disappointed you can tell and it makes me feel horrible. Like when I tell him it is time for bed and he doesn’t want to. He walks away with his head down sometimes and it just makes me feel bad. He doesn’t do it all the time but if he is watching a movie and I make him turn it off he gets that way. I definitely don’t want him to be depressed. Can you be depressed that young do they even know what it means? I have never gone through anything like this before and it has me so stressed and upset i feel sick to my stomach and like i just want to curl up in a ball and cry, I just want everyone to be ok. I want a happy healthy family. It seems as when one ting starts going right it does for a week then all mighty mountain of something else erupts, and it usually multiple things at one time. Like now I have all of Jordan issues I have lucians issues Keeping him well making sure he is gaining weight making sure his esophagus stays open an that nothing else is going on, all of the people and appointments involved to benefit him.My daughter and her mood swings and whiney ness because of the medicine she is on for her epilepsy. I am trying to keep up with he stuff at the house and trying to work and go to school and the school thing has not been going so hot lately. I am so exhausted there is simply no time. i guess I will drink more coffee or get me some energy something or another so that I can make myself focus when I am tired. Because I want to get this done and it is the only way it is ever going to happen. It is not just going to happen by its self. I feel like I am trying to split my self in a million ways. Hell last night I found my self feeding lucian having jordan sitting beside me reading me a book and lexi was eating already. Then I got her and him in the bath and then we got lucian all ready for bed but he is not feeling so well so it is not going the best. I got seriously maybe 3 hours of sleep last night and they were not solid. So I am hoping they can give him something that will make him feel better. He still mostly acts him self just not feeling up to par and that god offal cough. So I will post later what I find out about everything.

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